Assessment

“The Continuum of Normality”

In my files, I came upon an article I’ve kept for a few years, called, “The Real Reason Everyone Seems to Have ADHD These Days,” by Ralph Lewis, M.D..

Here are a few choice quotes from the article:

  • Part of the confusion stems from how ADHD is described and categorized as a “disorder.” Most textbooks or official websites state that ADHD is a neurodevelopmental disorder, portraying it as an abnormal brain condition with specific causes. The phrasing of such explanations creates the impression that ADHD is a “thing” that you either “have” or don’t have. This inevitably leads to endless debate about whether it’s a “real thing” and whether a particular individual really “has” the condition or not. 
  • “Despite the language of the textbooks and official websites implying that ADHD is a clearly defined, well-demarcated disorder, most experts if pressed, would no doubt agree that ADHD is almost always on a continuum with normality.”
  • “The fact that there is no fixed cut-off or threshold for the diagnosis means that ADHD is not a categorical yes/no diagnosis.”

Those of you who have read my blog posts for some time, know that I am in full synch with these points.

Along with what Dr. Lewis said about ADHD, you can substitute the word “dyslexia,” and the same essential point applies, as reading, spelling and writing issues occur on a continuum.

I like the phrase that he used, the “continuum of normality.”  It helps to move you away from something I refer to as “disorder thinking,” to viewing issues on a  normal continuum.

Put this on your phone notes:  “It’s all a continuum, baby.” (Dr. Richard Selznick).

Do you think that will make it into Bartlett’s Familiar Quotations?  Maybe you can nominate it for me!

 

Assessment Considerations

When it comes to an assessment for their child, parents are typically focused on “the diagnosis.”

Largely supported by the medical model, this approach embodies a, “Yes, he has it,” or “No, he does not have it,” perspective.

It is the belief held by many, that once one gets the diagnosis, the treatment will logically follow.

While this may be true in real medicine, I wish things were that straightforward in my world.

Apropos of that, a dad said to me,  “Come on, Doc,” tell it to me straight.  What’s he got,”  as I wriggled in my chair trying to side-step his question.

From my perspective, assessment should identify major areas of need and what should be done next, ideally guiding you on what I refer to as “next-step thinking.”

If you are having your child assessed,  important questions beyond “what’s he got”  include:

  • What are the identified strengths and the areas of greatest need? 
  • How mild, moderate or severe are the areas of need?    
  • How much direct instruction (i.e., tutoring)  is needed? 
  • What is realistic to expect from the school in terms of direct instruction? 
  • What type of accommodations would be helpful in addition to any direct instruction? 
  • If no direct instruction is offered by school, how do we deal with that? 

Notice, the questions are focused on the practicality of the skill needs and the consideration (ratio) of direct instruction to support and accommodation.

Takeaway Point

Let me tell it to you straight.

Assessment drives “next-step thinking.”  Ask the right questions!

“Getting Dissed (or ‘Dys’d’)”

Without turning this into a confessional, when I look back on my schooling here are a few things I know:

  • Math was far my strong suit. I probably needed tutoring, particularly as I had to suffer through geometry, algebra and calculus.  So, did that mean I had “dyscalculia” (i.e., a math disability)?”
  • My penmanship was awful.  My grandmother, a very old school second grade teacher, gave me penmanship lessons.  (They obviously didn’t take, as evidenced by my persistent scrawl.)  So, along with my “dyscalculia,” did I also have  “dysgraphia?”
  • My reading skills were reasonably strong, so I couldn’t own dyslexia (phew!).
  • I don’t think I was emotionally dysregulated, but who knows. My parents are no longer around to tell that side of the story.
  • While I think I got along with most of the kids, I was probably “dysmissed” by some along the way.  (Ok, I am taking poetic license here with a made up word.)

Aa long time ago in a galaxy far away, there were no “dys’s.”  They were not part of our parlance.

Now the “dys’s”  are front and center, occupying a great deal of parental speculation and concern, as in, “Do you think my child has dyscalciulia? (or whatever).

Are we better off now or the way it used to be?  I think arguments could be made on both sides.

Having assessed thousand of kids at this point, I often find it difficult to confidently determine where a weakness leaves off and a “dys” begins.  (e.g., It may be objective that the child is not reading well based on normative tests, but is it dyslexia?)

A weakness does not necessarily make it a disability.  Weaknesses are always part of a spectrum ranging from mild to more significant (severe).

Welcome to my murky world.

“Jargon & Phonemic Awareness”

There are many terms within education and dyslexia that don’t translate well.

My criteria for determining whether something translates well is the person-on-the-street standard.

That is, if you stop the average person on the street and asked them what a term means and you get a confused look, then the term is probably jargon.

Phonemic awareness is such a term often used in talking about dyslexia that does not translate easily.  It is jargon.  Therefore, I would encourage professionals to stop using it.

If you feel you must use it, find another way to explain what it means.

To help you, phonemic awareness is essentially the awareness of sounds within a given word.  The classic screening for phonemic awareness is the following:

To the child:  “Say the word ‘cat’.’”  (Child repeats the word.  “Now say ‘cat’ without saying /k/.”  If the child has awareness of word sounds, they will say “at.”

Phonemic awareness became a big deal a few decades ago when research showed that children with reading disability (i.e., dyslexia) often are weak in this skill.

In other words, phonemic awareness correlated with dyslexia.

Please keep in mind something that you may have learned from your introductory statistics classes.

Correlation does not imply causality.  In other words, phonemic awareness is not a cause of dyslexia.

Takeaway Point

Don’t weaken! Stay jargon free!

“Is ADHD a Valid Disorder?”

“‘I think the current diagnosis of ADHD is a mess and has been wildly overdone.  It blames a variety of symptoms entirely on the child’s brain, and ignores the child’s environment and the interaction with it.”  (Dr. William B. Carey, pediatrician, researcher, and medical educator)


Going through a pile of articles I have saved (hoarded) for over 20 years, one caught my eye, replete with coffee stains, by Dr. William Carey, the late, renowned professor of pediatrics at the Children’s Hospital of Philadelphia.

While not knowing him personally or having the pleasure of attending his lectures, I have been a behind the scenes disciple of Dr. Carey’s

Within the article,  “Is ADHD a Valid Disorder,” Dr. Carey raises many important issues that are as relevant today as they were when it was written.

Dr. Carey emphasizes that there is no one test or objective instrument to diagnose ADHD (often referred to in more casual terms as “ADD.”)

Typically, in the process of obtaining a diagnosis of ADHD, a parent will identify some common themes on a rating scale or questionnaire.  Some of these include:

  • He just can’t focus.”
  • “He’s easily distracted.”
  • “She won’t get started.”
  • “He hates homework and the teacher says his attention is very poor.”
  • “The teachers say that they are not doctors, but… (with the clear implication that they think the child needs medication).” 
  •  “She’s always fidgeting.”

When descriptors like these and a few others have been present for at least 6 months, the scales tilt in the ADHD direction and a diagnosis is typically obtained.

After receiving this diagnosis parents will often report a sense of comfort, feeling that they have, “finally gotten the answer.”

As is my nature, I will push back on this notion of “the answer,” emphasizing that there are many other factors that may not have been understood or addressed.

Just below the coffee stains on my saved article, Dr. Carey noted:

The assumptions that the ADHD symptoms arise from cerebral malfunction has not been supported even after extensive investigations.  The current diagnostic system ignores the probable contributory role of the environment; the problem is supposedly all in the child.  The questionnaires most commonly used to diagnose ADHD are highly subjective and impressionistic…The label of ADHD, which is widely thought of as being beneficial, has little practical specificity and may become harmful.”

Wow!  Dr. Carey is not mincing words in his taking on the ADHD industry.

Takeaway Point

Don’t be too quick to toss things out.  They may come in handy one day.

Thank you, Dr. Carey.

Must See the Neurologist

Even though schools will tell parents that they need to see a neurologist to diagnose dyslexia, the following are essentials that must be considered in an assessment:

  • Reading aloud from a graded word list to determine word identification skills and how automatically the words are read.
  • Reading real and nonsense words in isolation under timed conditions.
  • Reading passages orally at specific grade levels to determine reading rate, accuracy, and fluency.
  • Spelling of real and nonsense words.
  • Writing of a paragraph.
  • Screening of phonological processing competence, including phonemic awareness and measures of rapid naming.
  • Perceptual screening, including the copying of a series of increasingly difficult geometric designs.
  • Screening of language functions.

Are you aware of any neurologists who are doing this type of assessment?

It’s simply not in their purview.

Then why do schools continue to insist upon this?

 

“Getting ‘Dissed'”

Without turning this into a confessional, when I look back on my schooling here are a few things I know:

  • Math was far my strong suit. I probably needed tutoring, particularly as I had to suffer through geometry, algebra and calculus.  So, did that make me “dyscalculic? (i.e., math disabled)”
  • My penmanship was awful. My grandmother, a very old school second grade teacher, gave me penmanship lessons.  (They obviously didn’t take, as evidenced by my persistent scrawl.)  So, along with my “dyscalculia,” was I also “dysgraphic?”
  • My reading skills were reasonably strong, so I couldn’t own that particular “dys,” as in dyslexia.
  • I don’t think I was emotionally dysregulated, but who knows. My parents are no longer around to tell that side of the story.  They might have just called me spoiled, without the “dys” attached to the regulated.
  • While I think I got along with most of the kids, I was probably “dysmissed” by some along the way.  (Ok, I am taking poetic license here with a made up word.)

Back in the day, a long time ago in a galaxy far away, there were no “dys’s.”  They were not part of our parlance.

Now the “dys’s”  are front and center, occupying a great deal of parental speculation and concern.  Are we better off now or the way it used to be?  I think arguments could be made on both sides.

Having assessed thousand of kids at this point, I often find it difficult to confidently determine where a weakness leaves off and a “dys” is there.  (e.g., It may be objective that the child is not reading well, but is it necessarily “dyslexia?”)

A weakness does not necessarily make it a disability.

it’s often shades of gray and unclear.

Welcome to my murky world.

 

Dyslexia: Not a Score

A number of years ago, I had the good fortune to take part on a panel during a symposium on dyslexia sponsored by the grassroots parenting group, Decoding Dyslexia: NJ.  Dr. Sally Shaywitz, the author of “Overcoming Dyslexia” was the keynote speaker.

While talking about assessing dyslexia, Dr. Shaywitz said something that really struck me, as it reminded of something I had been saying for years.

As she stated, “Dyslexia is not a score.”

That statement is right on the money.

In the assessment of dyslexia, scores are certainly involved.   Tests such as the Woodcock Reading Mastery Test, the Tests of Word Reading Efficiency and the Comprehensive Tests of Phonological Processing, among other standardized measures, yield reliable and valid standard scores, grade equivalents and percentiles.  Such scores can be helpful markers in formulating the diagnosis.

However, the scores often don’t tell the whole story, as seen in the case of Marla a 12-year-old sixth grader.

Cognitive scores found Marla in the 60th %ile of verbal intelligence, with her nonverbal scores clustering in the 75th % percentile, meaning Marla’s a pretty bright kid.  Marla’s word identification (words read in isolation) placed her in the lower portion of the average range, with similar word attack (decoding) and passage comprehensions scores.

Marla’s academic scores would not have gotten the school too excited since the sores clustered in the average range, albeit on the low end of average.

However, listening to Marla read was almost painful.  Every time she came upon a large word that was not all that common (such as, historical,  pedestrian, departure) she hesitated a number of seconds, and either stumbled finally coming up with the right word or substituted a nonsense word (e.g., “ostrich” for “orhestra”).   The substitutions completely  altered the meaning, making comprehension challenging, even though she did compensate on comprehension questions getting many of them right.

Two other areas of concern involved the way that Marla  spelled (circle/serkul, correct/crect, minute/mintue)  and her sentence/paragraph writing.  While Marla could memorize for a spelling test and get  good grades, her spelling and her open writing were very weak.

Similar to the sound of Marla’s painful oral reading, producing something in writing was a painful process for her.

Takeaway Point:

With dyslexia, you can’t just look at the scores and make a conclusion.  You need to look under the hood to see what’s going on with the engine.

“Dyslexia is not a score.”

Brief Tip: Know What You Are Targeting

Many children referred for assessments are related to struggles with reading, spelling and writing.

Not knowing what direction to go, parents feel a sense of desperation and need guidance on appropriate next steps.

Once the issues are identified, the remediation, unfortunately, can be a bit scattershot.  This is embodied in the statement a teacher recently told a mom, “Well, we do a bit of everything…a little comprehension, some decoding, and writing stories.  We’ll touch all bases.”

For struggling children, I prefer a different mindset.

Rather than a “touch-all-bases” approach, I suggest a different direction.

To get clear on the remediation, start with the concept that there are are two fundamental types of reading problems:

  • Type I: The Type I child has trouble with reading rate, accuracy and fluency.  These children largely fit the definition of dyslexia.
  • Type II: These are children who read fluently, but have difficulty understanding what they read.  Usually, they have trouble with inferences and drawing conclusions.  For such children, confusion reigns.  Unfortunately, they are often quickly viewed as Inattentive ADHD, when there are likely other variables not readily understood.

For either type, tutoring is a great way to go, but only if the tutor is clear on what the problem is and that they are committed to a laser-focused approach.

Scattershot may work for the children who are not in the Type I or Type II categories, but for the rest, it’s important to get clear.

Know what you are targeting.

“Dyslexia is Not a Score”

A number of years ago, I had the good fortune to take part on a panel during a symposium on dyslexia sponsored by the grassroots parenting group, Decoding Dyslexia: NJ.  Dr. Sally Shaywitz, the author of “Overcoming Dyslexia” was the keynote speaker.  While talking about assessing dyslexia, Dr. Shaywitz said something that really struck me, as it reminded of something I had been saying for years.

As she stated, “Dyslexia is not a score.”  That statement is right on the money.

In the assessment of dyslexia, scores are certainly involved.   Tests such as the Woodcock Reading Mastery Test, the Tests of Word Reading Efficiency and the Comprehensive Tests of Phonological Processing, among other standardized measures yield reliable and valid standard scores, grade equivalents and percentiles.  Such scores can be helpful markers in the diagnosis.

However, the scores often don’t tell the whole story.  Here’s one example:

Jacob, a fifth grader, is in the 60th %ile of verbal intelligence and his nonverbal score is in the 75th % percentile, meaning Jacob’s a pretty bright kid.  Jacob’s word identification standard score on the Woodcock placed him in the lower portion of the average range, with similar word attack and passage comprehensions scores.

Jacob’s scores would not have gotten the school too excited since the sores clustered in the average range.  Yet, here’s what I told the mom.

“There’s a lot of evidence in Jacob’s assessment that suggests that he is dyslexic.  Even though his scores are fundamentally average, he was observed to be very inefficient in the way that he read.  For example, while Jacob read words like “institute,” and “mechanic” correctly, he did so with a great deal of effort.  It was hard for Jacob to figure out the words.  For those who are not dyslexic, word reading is smooth and effortless.  Those words would be a piece of cake for non-dyslexic fifth graders.  They were not for Jacob.”

“Even more to the point was the way that Jacob read passages out loud.  Listening to Jacob read was almost painful.  Every time he came upon a large word that was not all that common (such as, hysterical, pedestrian, departure) he hesitated a number of seconds and either stumbled on the right word or substituted a nonsense word.  An example was substituting the word “ostrich” for “orchestra.”  The substitutions completely changed the meaning.

“Finally, the two other areas of concern involved the way that Jacob wrote, as well as his spelling.  While Jacob could memorize for a spelling test and get  good grades, his spelling and his open ended-writing were very weak.  The amount of effort that Jacob put into writing a small informal paragraph was considerable.  There also wasn’t one sentence that was complete.”

“Even though Jacob is unlikely to be classified in special education because of his scores, I think he has a learning disability that matches the definition of dyslexia as it is known clinically (see  International Dyslexia Association website:  www.dyslexiaida.org).  The scores simply do not tell the story.”

Takeaway Point:

You need to look under the hood to see what’s going on with the engine.

With dyslexia, you can’t just look at the scores and make a conclusion.

“Dyslexia is not a score.”


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